jason: jason (Default)

Being both Autistic and an educator, I’m very interested in how our educational institutions are structured to inure children to accept the heteronomy of adult run institutions. I know that if children are given autonomy to do whatever they want that disaster will ensue, but I also know that we do not help children learn to be as autonomous as they safely can be. As John Locke said, children should be kept safe, well cared for and safe from hurting others, but beyond that they should be left to their own devices, and given nothing. They should find their own way until they choose to come to adults… only then should we engage them. Otherwise we are inculcating them with our own goals, values and dreams, and replacing what is their intrinsic interest with a worldview based on performance for adult approval. By the time they end up at university, it is too late to refind the intrinsic interest that is what they need to become fully actualized individuals.

Being confronted with the notion of Childism (Childism is the subordination of children’s needs/interests for the benefit of adults, even if adults think it benefits children.) is a very inconvenient notion for parents and educators. The whole notion of the institutionalization of lived experience that is reflected in our schools, hospitals and social services represents the organization of our own adult lives according to externalities. Yet, we ostensibly have a say in this matter. Children do not. We all decide for them, and by the time they are in a position to have a say they have been operantly conditioned to comply.

More on this later. Just a thought I wanted to get down.

Mirrored from Lemmingworks.

jason: jason (Default)

I was reading Ragga’s post Why Parents of Autistic Kids Get Judged and What to Do About It and I had some thoughts. I’ve not blogged in over 12 months, but I’m really getting into studying sensory integration disorders and Melanie and I are writing a book chapter on autistic semiotics.

In response to her post, I said the following:

I’m a verbal autistic adult, with out children. The general problem of parents’ expectations of having a normal child, and to further normalize a child’s behaviour is the issue. Parents of autistic children may resort to normalizing therapies, and often see the successes of those therapies as a victory. I’m sure that my parents find it something of a victory that I can pass as neurotypical at a glance, and have been able to hold down some employment. Obviously parents of children on the spectrum are more understanding of the child when they act inappropriately, but I wonder how many parents are comfortable not hoping for neurotypical behaviour. I would say that the expectations are ubiquitous, and need to be challenged or accepted. But I don’t find it shocking that an adult who is not aware of the difference the child has would look at the parent as being at fault.

I would like to wear a tshirt saying “I’m autistic… what’s your problem?” or “Fight Neurotypicality” though with a smile. I’m not angry, but I am NOT shocked at how parents normalize and have normalizing expectations. That’s what a parent is all about.

BTW, your kids look cute. I have pictures of myself with those same, to me, autistic questioning look.

to which she responded

Thank you Jason. Your points are very insightful. …perhaps as to be expected given that you have autism yourself and already been through what many autistic kids are going through right now. I am very thankful for your input as I believe that we parents of autistic kids should listen to autistic adults the most as you know exactly what you are talking about. Sure, every individual with autism is different and autism comes out in many different ways but… there are still some common denominators and you have the insight that others can never achieve – as much as we try.

I have never thought of the angle that you suggest; that we (parents of kids with ASD) are simply too expectant ourselves. Like you say, we do not have the same expectations towards our kids as maybe parents of neurotypical children but perhaps our expectations are still too high despite of that. I have to admit that I do indeed hope that my boys manage to learn the things that people are expected to learn, both through school and in society. …it’s just, you somehow always imagine that everyone want’s to be as normal as possible, including your children, or in other words (as normal sounds kind of negative in this context) that they would themselves want to fit in. Perhaps I’m wrong…?

To which I then said:

Normal is not only a socially constructed fiction that is most convenient for market driven cultures of the post industrial revolution era, but it is unnatural and in the end bad for the species.

I’m not normal. I have 4 degrees, a PhD, teach at a university and run a well funded research lab. I think lots of people would like to be non-normal like me. I also am a high school drop out who didn’t learn to write properly until his 30s, and never had a full time job until his 40s. Some people would not like to be that kind of non-normal.

“Overall the average American, age 25 or older, made roughly $32,000 per year, does not have a college degree, has been, is, or will be married as well as divorced at least once during his or her lifetime, lives in his or her own home in a suburban setting, and holds a white-collar office job”

Parents are deluding themselves if that is their ‘goal’ for their children.

The notion “I just want my kids to be normal” seems to me to be a hope that children won’t be singled out, bullied or marginalized by their peers. Wishful thinking if you look at the statistics relating to bullying and abuse.

Feminist thinking broke the mould in terms of what we thought was ‘normal’ in the workplace and the professions a century ago. The queer community has broken the mould in the civilized world for what is accepted as a meaningful relationship, etc. That means we don’t see the world from a black/white perspective that puts the white, protestant christian, university educated male as the model of what is good and normal. We see the world as a continuum, from left to right, male/female, the whole queer continuum from the hetro-normative male father of the family of the religious right to the same-sex two-spirited parents brining up children in a community context. And somewhere there is a trajectory/continuum for the autistic on an arc that intersects these continuum at some point.

I am NOT an expert on autism. I have read much of the literature and thought about it a lot over the past years, and incorporated it with my lived experience. I look at autism as from the social disability model, meaning that we are disabled by a society that is not inclusive to people who are different, and expects medical model normalcy. I have no time for normal (as described above) nor the economic model is supports.

I’m starting to work from the model that we have to engage children who are autistic in finding out the strategies to reduce their stress and discomfort, and frustrations with themselves and their environments. We’re trying to develop tools for sensory play to help autistics and people who are interested how and why to explore sensory information as a way to reduce stress in the autistic individual. In the end, autism IS a sensory integration disorder. I think that solving the problem with how we engage with and share sensory information will go a long way to finding our place on the continuum of human experience, which in the end is what we want for ourselves and others.

All the people I know on the spectrum are particularly sensitive to disruption, and when they lack the freedom and autonomy to deal with disruption in the way they prefer, overloads are inevitable. And I feel that dealing with the issue of sensory integration is beyond all other things both the direction to allow an individual to engage with others most fully and the key to happiness.

To which she replied:

Wow, you should write your own blog – seriously – I think a lot of people would like to read what you have to say. So many great points. Thank you.

I embarrassedly acknowledged that I have a blog, and this one goes back to 2001. I lost the earlier stuff. I should be obviously doing what she suggest, and blogging more. I think I’ll blog more on… autism.

Mirrored from Lemmingworks.

jason: jason (Default)

Do preschoolers need mandatory screen time?

This is an interesting article. Have a read and then perhaps have a look at my thoughts… they don’t really specify what ‘screen time’ is. I like CCFC, but this seems manipulative. I agree. with limiting children’s exposure to commercial media (tv, computers, games, videos, toys, fashion, print images). But buy going after ‘screens’ rather than commercial media, they’re being anti-inclusive. The use of ipads for ASD children, the use of non-commercial children focused open source operating systems like ubuntu, non-commerical constructivist learning environments like minecraft or WorldofGoo, and social media technologies that have a positive impact on a child’s sense of self and knowledge of the world/culture/identity, all point to positive uses of technology. And as for the issue of obesity, food choices and physical activity are more useful solutions than removing screens. When I go into the an early learning environment and see them spending so time sitting around, waiting for teacher, waiting for everyone to take their turn (of say 20 children), lining up, etc., they’re not being physically active or engaged in hands-on meaningful learning, I don’t see how removing the 2 computers that are sometimes used, is going to help anyone.

Children are immersed in technology, and by ignoring it, banning it or mindlessly embracing it, we ignore the opportunity to constructively challenge corporate and commercial interests. Meaningful use of technology goes hand in hand with meaningful learning opportunities, physical activities and food choices. I’m not a fan of sticking my head in the sand :)

Mirrored from Lemmingworks.

jason: jason (Default)


mr pant is serious, originally uploaded by jasonnolan.

Mirrored from Lemmingworks.

jason: jason (Default)


Sockmonkey is DryerCat, originally uploaded by jasonnolan.

Mirrored from Lemmingworks.

jason: jason (Default)

Catsy asked What are your goals?

I usually don’t do this, but somehow I’m feeling like I can.

  1. I do yoga every day. I do just enough to get me going in the morning, but never enough to improve. I want to move beyond maintenance.
  2. Get a regular writing process going. I hate that writing is rushed and never really something I get around to doing in a thoughtful and reflective manner. I need 1-2 writing only days each week. I’m hoping that that’s wednesday and thursday.
  3. Balance my eating. I eat good quality but I’ve never found the right rhythm. I eat too little or too much, or forget to eat. This year I kept healthy snacks with me all the time, which meant that I was eating very often, and I think that that’s the best, but it needs fine tuning.
  4. Spend more time with Yuka. I tend to work 6 days a week and Yuka works less. I want to sync up our schedules more.
  5. Get tenure dealt with. This is cheating, because it will happen regardless. Though I guess I could let it run on longer if I did nothing. Getting #2 done will get me through here one way or another.
  6. Drink less wine. Just because it is sticking around my waist a bit too much.
  7. Make the EDGElab the most rock’n lab in the universe, and actually get useful, meaningful and conceptually valuable stuff out there.

Hmmm… I don’t really have any goals. These are like, ya, well… that’s life so do it. But there’s nothing that is really a ‘goal’ or something to be achieved.

What are your goals?

Mirrored from Lemmingworks.

jason: jason (Default)

It is as natural and accurate a depiction you’ll ever see of me in the inner orange.

Mirrored from Lemmingworks.

jason: jason (Default)

iTots crave Apple’s new toy says that the iPad will change children’s culture. Our research is suggesting that it will change learning as well.

Mirrored from Lemmingworks.

jason: jason (Default)

Early Learning Centre uses cardboard to overcome physical and social barriers of child with special needs by Antoinette Mercurio, talks about adaptive design work done by Edge Lab members.

Three-and-a-half-year-old Zoe Ross has improved her mobility by leaps and bounds after using adaptive design, customized equipment for children with disabilities, in Ryerson’s Early Learning Centre.

Mirrored from Lemmingworks.

jason: jason (Default)

Nielsen ->kids aged 6 -12 rank iPad as top gadget they want this xmas http://bit.ly/dYBFGN

Mirrored from Lemmingworks.

jason: jason (Default)


Howard Rheingold @ the EDGElab, originally uploaded by jasonnolan.

Having lunch with the lab members. October 10th.

Mirrored from Lemmingworks.

jason: jason (Default)

on halloween

Mirrored from Lemmingworks.

jason: jason (Default)

How to think like a child: Letting go of adult inhibitions can free up our creativity and boost our wellbeing” is a great article about how to get people rethinking who and what they are in order to think about how they engage with the world within and around them.

Mirrored from Lemmingworks.

jason: jason (Default)


Toronto Island in June, originally uploaded by jasonnolan.

Toronto Island in June

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Mirrored from Lemmingworks.

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Rania’s working on adaptive design in the EDGE lab and came up with this wonderful bit.
DSC03824

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Mirrored from Lemmingworks.

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A trailblazer from birth

There was nothing ordinary about Aiden Rivera Schaeff’s life.

He was the first of some 20 babies born to a lesbian parenting support group in Kingston in the 1990s that paired lesbians with willing sperm donors and arranged for their artificial insemination.

He was the first child in Ontario to have two women’s surnames on his birth certificate and later watched his two mothers legally marry.

Aiden was born a girl named Caitlyn in 1992 but came out as transgendered in his first year of high school.
He told his mothers that he identified as a man and wanted to physically become one.

My mom used to work with one of his moms.

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Mirrored from Lemmingworks.

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Sarah, Alison and I got the chance to show off our Adaptive Design work we’re doing at the EDGE lab last month. Here are some of the pictures.
showing our adaptive designs

showing our adaptive designs

showing our adaptive designs

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Mirrored from Lemmingworks.

October 2013

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